Today is Rare Disease Day. For those of you who don't know, NORD (National Offices of Rare Diseases) defines a rare disease as one that has fewer than 200,000 patients in the US or about 1 out of every 1000 people. Shwachman-Diamond Syndrome, which is what the Wiz has, is one of these diseases: the incidence of SDS in the US is 1 out of every 75, 000. There are so many of these diseases (most of which are genetic) out there.
If you'd like to learn more about the rare disease in our life, here are more links:
http://www.shwachmandiamondamerica.org/index.html (Wiz's picture is in this website!)
The Wiz is actually sick right now. He has a sinus infection (hence the CT scan). His only symptom was his asthma was worse. That's the way life is sometimes. (Wish us luck--he has to have a CBC today.)