Today, L had his first dose of SCIG. I was under the impression that he was going to receive one dose as IVIG, and then we'd switch to SCIG. We lucked out, and he had SCIG today. It only took 2 hours to infuse, so we got to leave at noonish. That was so nice. He didn't have a chance to get bored with the new game boy, so that's a good thing.
He did really well with it. He cooperates so well for any medical procedures. I'd love for him to cooperate that well at school! But, he's a five year old boy who likes to talk. Apparently, he has many important things to say, so being quiet is not in the cards. Back to the topic, he has some localized swelling (which is normal) and is still small enough to only have one infusion site. This means it will be easier for me to learn how do this over the next few weeks. The nice thing about all of this, is that because we are doing it this way, we can just pack it all up and take it with us and go on vacation or whatever. It also means that he'll have a chance to do normal kid stuff--like go to camp and so on. It may even mean that he won't have as many bacterial infections, because if he doesn't catch viral infections, they can't develop into bacterial ones.
Here's a picture of M with his crazy hair for crazy hair day at school.
2 comments:
I'm so glad that he took it so well, he sounds like a real trooper. Hopefully it will help now! I had been under the impression that it was more like my SCHGH, but I see that it isn't. Good luck with it anyway, and may you see results as quickly as I have!
P.S. nice hair ;-)
We are really lucky that it will only take a couple of hours a week. It also looks as if L will be able to do things while we infuse, too. Thank goodness!
What's funny about the hair is that everyone who saw M thought it was a great look for him!
Post a Comment